Saturday, May 16, 2009

Next Phase

IMG_1212 Allie will wear these braces for the next four months. These are called HKAFO's; that is Hip-Knee-Ankle-Foot-Orthosis. We thought maneuvering her in a cast was tough. That was a cake-walk compared to our new setup. Allie weighs much more in this contraption than she did in the cast (she probably weighs more than you did before your last diet). And she still has to wear this thing 24/7.

I have to tell you: we were not expecting this. We were told that Allie would wear braces, but from the knee down. We lost it when we saw Jeff The Braces Guy bring this monstrosity out.

I usually try to be upbeat in these posts, but I am not at all upbeat about this. This is depressing. Enough already.

The good news is we are able to take Allie out of her braces to give her a bath IMG_1214and today I plan on taking her up to the pool for a dip. That should be fun. She can also come out of it at physical therapy when Dancer Joan works her magic on her.

But she has to sleep in this set up and that's hard. She's more comfortable in this than the cast, but she has to constantly be adjusted through the night because she can't roll herself over. So we constantly give her the old heave-ho all night to keep her from cramping up and getting sore. Don't worry; we've gotten use to not sleeping through the night over the past two years.

Allie is doing much better through all this than we are. One thing the medical professionals have continually said is that children are amazingly resilient. It's the parents that panic and freak out most. But these braces conjure up childhood memories of the Dark Side of the Force. I'm pretty convinced that these braces are manufactured by the same evil corporation that assembles uniforms for Darth Vader's Storm Troopers, protectors of the Death Star.



Sunday, May 10, 2009

Cast Away

For six weeks we looked forward to Allie having her cast removed. Friday was the big day.

What a day.

The front of the cast was discarded while the back half of the cast was Ace bandaged to her legs to keep her legs in place. From the doctors office, she went to be fit for a hip-knee-ankle braces.
The past few days have been a huge adjustment for Allie. A painful one. But she wants to be happy.

This morning, we unwrapped her legs to allow her to become reacquainted with them. Below are a couple of videos of her getting to know how to move her feet without them rubbing against each other.

Thursday, May 07, 2009

Phase Two

Project Duct Tape has moved into it's second phase. We've discovered a design flaw in the intersection of the cross-bar with the cast on her left leg. Our research and development department spearheaded by the charming and beautiful Susan submitted designs yesterday for the modification pictured below.


The retrofit only has to make until Friday tomorrow morning when the cast is cut off.

Tuesday, May 05, 2009

The Morning Project

How many uses can you think of for duct tape? This morning we strengthened the cross-bar on Allie's cast. The bar broke inside it's fiberglass wrappings. So we splinted the break with a plastic chopstick and taped it up with neon green duck tape.

We splinted the splint. Nice.


By the way... the green stuff in Allie's mouth is avocado, not misplaced scraps of green tape. Honest.

Monday, May 04, 2009


It was a busy afternoon at Allie's house today. Mommy came and took me for a walk.


And Grandpa came over with a pizza in each hand. Then Grandma showed up in time to help give me a bath.